KEYS

Karing For Every Young Survivor

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CDC Young Survivor Project

Our partnership with the CDC has allowed us to accomplish and implement several projects and initiatives in order to better serve our young survivors and metastatic clients.

Below are some of the exciting initiatives that we have implemented through our grant.

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In 2020 we conducted a multi-faceted needs assessment, to confirm the most significant areas BCRC should focus on. This gave us the opportunity to hear first-hand from breast cancer survivors, thrivers, and medical professionals about the unique needs within our target population.

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BCRC is dedicated to providing educational opportunities to physicians and healthcare professionals. We host two forums every year where subject matter experts present topics that focus on improving diagnosis, treatment, and survivorship among young survivors.

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We developed Breast Cancer University, a multi-lesson course for Community Health Workers (CHW) that focuses on understanding and recognizing the psychosocial needs of those with breast cancer.

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BCRC created a video resource library to provide YBCS and MBC with educational videos. Our collection of videos from subject matter experts, present relevant topics such as psychosocial, emotional, and treatment.

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BCRC hosts two classes each month that are offered as a means of support to newly diagnosed breast cancer or metastatic breast cancer clients. Our expertly trained and knowledgeable patient navigators are present to answer the most common questions our clients have.

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BCRC has formed a partnership with the University of Illinois YAAS! program to create a Breast Cancer Survivorship Virtual Learning Collaborative designed to educate community health workers and patient navigators. This course utilizes an interactive format to provide detailed information about how community health workers and patient navigators can better serve their clients.

Grant information

Objectives of the grant we are addressing include:

The establishment of a network of survivors and caregivers to facilitate policy, system, and environmental change (PSE) interventions that increase access to lifestyle programs, clinical preventive services, and cancer care among survivors.

Development and implementation of innovative technological educational opportunities for health care providers on topics relevant to the delivery of appropriate treatment and care of YBCS and mBC.

Utilization of patient navigation (PN) and community health worker (CHW) program strategies to reach underserved populations to enhance their access to and utilization of YBCS services and programs.

Utilization of innovative technological approaches to educate and inform survivors, caregivers, and providers.

Advisory Council

The following members of our Advisory Council are important to the success of our Young Survivor Project. Members of the Advisory Council share their gifts in service to this mission by providing BCRC their professional expertise; diverse knowledge of constituent perspectives; connections to local, national or international resources, colleagues or peers; philanthropic support or other forms of needed assistance.

Kathryn-Hudson

Kathryn Hudson, MD

Medical Oncologist – Texas Oncology – Chair
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Angela Wicker-Ramos, PT, DPT, CLT-LANA

Oncology Physical Therapist/Director of Rehabilitation – Cancer Rehab and Integrative Medicine
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Chandra Xiong

Survivor
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Deborah Vollmer Dahlke, DrPH

Adjunct Associate Professor – Texas A&M University
Debra-Patt

Debra Patt, MD;

Medical Oncologist – Texas Oncology
Evan Wiatrek

Evan Wiatrek

Caregiver
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Kelly Martinez, MD

Surgeon – Baylor Scott & White
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Linda H. Yoder, PhD, MBA, RN, AOCN, FAAN

Professor – University of Texas at Austin
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Mischca T Scales, PhD, PLLC

Psychologist
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Rachel Belkin

Survivor
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Rebecca Seguin-Fowler, CSCS, RDN

Associate Director of AgriLife Research – Texas AgriLife
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Sangeetha Kolluri, DO

Breast Surgeon – Austin Cancer Centers

Young Breast Cancer Survivor (YBCS) Subcommittee

The following members of our YBCS Subcommittee are crucial in the success of our Young Survivor Project. Each member brings valuable expertise from their experiences with breast cancer. Members of this subcommittee provide insight, personal experience, and guidance for BCRC projects and initiatives.

Chandra Xiong

Chair

Adrienne Thal

April Flynn

Brandi Schultz

Christa French

Eden Lackey

Emily Hoaldridge

Erinina Ness

Justina Barone

Kim Mabry

Kristy Lipman

Leslie Foxworth

We have the privilege of working with many partners across the country who share the same dedication to supporting breast cancer survivors and thrivers. To learn more about their efforts, please visit their websites.

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